Monday, January 29, 2007
Wisdom From a Seven Year Old
I hold in my laughter and look at him out of the corner of my eye. He looks at me openly and blatently and gives me a look like, "Well, it's YOUR decision" and he rolls back over on his back to continue reading.
This is a true story.
To further gross you out, I did NOT leave the room. I am the only female here. I will not be ousted from my comfy abode by a stinky (but adorable) little boy. Just who's in charge around here anyway?
J
Saturday, January 27, 2007
I've always wondered...
I did it. I recorded the Oldest's sweet little three year old voice (back then). Someone at the hospital had let me borrow an old time tape recorder and that's how I did it. To this day, I still have that recorder. Couldn't bear to give it back. I remember the first time I played it for Lucas. He was sedated of course. He could do things like squeeze fingers, he opened his eyes now and again, sometimes with blank stares, sometimes right at me, he did random things like that which I hung every hope prayer and dream on by the way, but I digress, he was of course, sedated. When I played that little voice on the recorder, Lucas stilled. Stilled like I thought he knew who he was listening to and if he stilled more, it meant he could soak up his brothers voice more. And as I watched his face, studied it while the recording played on, two tears slowly fell down his face. I remember the air getting sucked out of me and sobbing right there in front of him. He responded. I coudn't tell what he was feeling except for those two tears. I thought that he was saying, "I miss you all so much and I don't want to be here, stuck here, with all these things in me and where is my "Oldest" anyway?" Of course, me, with all the drama, seeing those two tears, that is what I thought. And it killed me.
That whole episode spurred me on to hit the doctors with a whole new set of more pointed questions, 'is he hurting and we can't tell? can he really hear what we are saying and want to respond in ways only he can? is he hungry? how can he not be? why is he crying tears? Oh they tell you what you want to hear sometimes I think. Of course I think they are bound to some sense of honesty but I also think they could see things we could not, especially before we knew that his corrective surgery was botched and that his heart condition of tetrology of fallot still existed, but now worse that before the corrective surgery. I think they maybe were trying to be humane and not tell us everything. Of course I could be wrong, I don't know. When a patient or patients parent wants to know real questions like that, it means they are headed straight for the real nuts and bolts of it all and they want real answers and they don't care if the real answers might hurt them, they still want the answers. Maybe in some ways the doctors tell us the easy version to help avoid US the pain of what the real truth might be.
Greys Anatomy last week. George's dad died. While he was in the hospital, they had a round table discussion about whether they should let him go or not. He was in a very sedated state and unresponsive after surgery and the doctors realizing that cancer had spread throughout his body. Do you know how many round table discussions we had? Some literal round table discussions and some figurative ones where all doctors were present and we had these tough conversations but no round table was physically present? SEVERAL. Not just one. Lucas will die tonight. Prepare yourselves. Call your families. He won't make it through the day. It'll get much worse before it gets better. He's very sick. Blah blah blah. Back to the topic. George's brothers said to George (who is a doctor himself), "what should we do what do you think?" and George says this, long pause then "He's not himself, he's hurting, he isn't Dad like this" and that was it. That moment while I watched that show, stood still for about three minutes it felt like. All the memories which were already flooding my brain just stopped. I mean, I've always wondered you know, I did ask all the questions to them back then, WAS HE HURTING ALL THOSE MONTHS? Why did he cry random tears with no sound? Should I have seen the signs so much sooner? Not asked him to fight so long? Jesus. So I'm thinking then, while watching this show, yes, it must be true. George is a doctor, he's being real, he knows the real truth, he's leveling with his family. Not a reason in the world to BS his mom or brothers, he says it outright, 'he's hurting right now'. OK OK OK. So George's dad and Lucas are very different. Georges dad is an actor on a show and it's not real. Lucas was a baby born with a heart defect and he was very real. But the situations, they seemed very very similar. I know they try to be true to life on these medical shows. They do. So now I'm wondering, after all this time, did we do the right thing? By asking that little boy to fight for so long? To believe in him? To ask him to climb that very steep mountain of his kidneys failing, lungs failing, and all the numerous infections and fight it all? I mean seriously, how delusional were we? And the pain he must have been feeling? Like the time the doctors in Philly literally flew in the room for the millionth time, threw a huge blue cloth over him, cut a hole in it and right there and then cut a hole in HIM to fix something that some monitor outside our room was telling them something was wrong wrong wrong? Do you think he felt THAT pain? Oh yes. I know he did. And I stood in the corner of his room crying tears like the Niagra Falls that I've never been too. What the hell? I remember that moment crystal clearly. I was there alone. My honey was here, back home with the Oldest, forced to live life to get a paycheck and try to fake a sense of normalcy for him. I was thinking, is this right? What are we doing? STOP STOP STOP! But I let them. I mean, they were saving him after all, right? Jesus. What was I doing?
You see, I've always wondered. What was the right thing? What WERE we supposed to do? I guess it really is irrelevant now. What's done is done. He's gone. He's in Heaven, exactly where he's supposed to be. More safe there than he could ever be here. If I could only stop re living. If I could only stop beating myself up. I don't think that'll ever happen. Too many things to noodle through. So much happened that I've never even said out loud believe it or not. So much.
I pray for peace. I pray for a sense of calm and less anger. This is a good prayer. This I pray for.
Jenn
Friday, January 26, 2007
Being a Mom
--Is non stop
--Is fun
--Is TIRING
--Is full of hope
--Is so gratifying on every level
--Is enough to drive you to drink
--Is enough to make you step in front of a 100 mph bus to save your child in a heartbeat
--Is the rise and fall of me
--Is the one thing and I mean the one thing that keeps me from choking every family member who lives in this house with all the laundry that's in the same said house
--Is the best. And I do mean that. But right now....I am just TIRED.
Maybe it's because I'm sick and still have to keep going, doing. But right now I.AM.JUST.SO.TIRED. And usually, if I'm feeling tired you aren't going to hear it from me. It just goes with the territory. Mom. Tired. One in the same. But lately, this whatever it is, sinus infection, in addition to attacking my voice and making me sound like an old person who's smoked for 75 years, is draining all of my energy.
Now let me go into the Oldest's room and purge all his old clothes. I got mad and threw them into one pile (from the closet where they were hidden away and 'somewhat' organized) in the middle of his room. I kid you not when I say the sum of that pile is taller than his bed. It's not as BIG as his bed but the pile I made is TALL. Now I'm looking at it like, "oh my. what to do now? why did I do that? seriously?" When all I want to do is take a nap and get better. Wah wah wah. I know. I know. Cry me a river.
-pishaw.
Jenn
-J
Monday, January 22, 2007
Breath of Fresh Air
It's like a breath of fresh air. It's wonderful. For both of us. And my husband will say, "is he ASLEEP? That was quick" or "wow, he's asleep already?" to which I just smile. Yep. He's a good boy. Full of energy all day long and then when it's time for sleep, done deal. He's not a sleepy head baby or anything. I just think he knows when he's had his limit, hit the wall, you know, done for the day. Love that. Give me more breaths of fresh air I say. Bring them on.
Thursday, January 18, 2007
Good Job
Wednesday, January 17, 2007
Sunday, January 14, 2007
Visiting the Cemetary...
I don't know. Maybe one day, I will have an epiphany, and just 'get' it all. I try. I try so hard.
So I wrapped that pretty ribbon around his vase and made the nice bow and arranged the flowers just so while we all sat there and said our prayers. The Oldest said his was a 'wish-prayer' so he couldn't 'say' his out loud (uh huh) so I made a big deal about how I'm not afraid to pray out loud and bent my head to pray. I said what came to my heart and then as I got choked up, my husband took over. Like a flash, the Oldest was at my side, not babying me, but just physically there. Like a magnet. Fussing over a flower but right there where prior he had been sitting across from me. I noticed the change in him and I smiled. I am lucky. Right? Right.
I see that.
-J
Pirates!

And the second sequel, the third movie in the series comes out on Memorial Day this year. They already have a few characters out for this movie, and uhm, I got him two yesterday. I know I'm bad. He plays with them like they are in battle scenes (like in the movies). Here is a picture I just took of his little set up.
The movies kind of give me the creeps because they make them so real and the characters are so grotesque looking, like Davey Jones?
But I suppose it's Disney's way of making Pirates fun, kind of a movie for kids and adults. Never show any hard core violence. Some scenes infer horrible things but you never see it, which is a plus for me because compared to a lot of our friends and some family, the Oldest leads a very sheltered TV/Movie life. As I like it. :)
Fun stuff.
Jenn
Amaryllis Plant
This is an Amaryllis plant my Aunt D sent me for the Holidays. It has bloomed beautifully. I love taking these kind of shots. I'm not a photographer by any means and still need to sit down and figure out all of the features this camera has because I know I'm underusing it if not using it improperly. I do though have the love of taking pictures and trying to capture just the exact right thing; that has to count for something-no?
This thing was nothing when it got here from Harry and David. Just bulbs in a gorgeous round box. Now look, about three weeks later, this. The full shot shows how tall it is. I love it. I like the close up shot better because it shows the beauty of the actual flower. I'll save the bulbs when it dies. So pretty. Thanks Aunt D!!!!
Just sharing..Jenn
Saturday, January 13, 2007
Book Meme 123.5
1. Grab the book you are reading now.
2. Open the book to page 123.
3. Find the fifth sentence.
4. Post the text of the sentence here as a comment.
5. Don’t search around and look for the “coolest” book you can find. Take it from what you are reading. If you are not currently reading anything, pick up the closest book to you. Don't hunt for cool titles, just get the closest thing.
Lets see if any of them having anything in common at all. Anything. Six degrees of separation? Is there anything to it? I don't know. This will be an experiement.
Go!
On my Heavy Heart Tonight You Are
When you have a child the hopes and dreams and expectations you have for him are endless, boundless even. When we lost our second son, it took some time to grasp that it had even really happened. Of course, at his funeral we knew. Of course, the first day we went home without him, having traveled home from Philadelphia without him, we knew. When I sobbed so hard the dry wall in the living room might have crumbled where it was and my husband was holding me up and crying with me, we knew. BUT as time has gone on, the realization and the acceptance has grown smoother and softer, like water smoothing and rounding out a perfect little pebble on a quiet beach somewhere. He remains the reason for so much. Lucas is the whole reason we are where we are today. The reason I do what I do and I'm very sure in my heart of hearts, he's the very reason that my husband is such a terrific person, a kinder person. The Oldest still remembers him, and more than anything, MORE THAN ANYTHING, he simply remembers Lucas' essence. He knows innately the importance of remembering him in our daily lives. It's just a part of him. And so that helps make us complete as if the Littlest doesn't do it perfectly himself, the Oldest helping us close that gap helps us realize that this is our family. Our family now. Missing a very important link but bridged as best it can with the only glue we have to offer up; love.
I don't want to say to you, "Imagine losing your child, hold them close and closer, no matter if they are young children or young teenagers, hold them close, know where they are, know who they're with, hold their feet to the fire, give them rules, be nosey, talk to them, and imagine they weren't here." but I WILL say to you, "Imagine losing your child, hold them close and closer, no matter if they are young children or young teenagers, hold them close, know where they are, know who they're with, hold their feet to the fire, give them rules, be nosey, talk to them, and imagine they weren't here." Today is a gift and that isn't just cliche'. Take it from me. It is a gift. Learn from us. There are a thousand lessons I learned from his birth, his journey, his fight and his death. Even the road till now has been filled with much insight. And I try to share it here, not always, but now and again. Sometimes I simply come here because I NEED to in a selfish way. I'm only human, a mamma, just missing her son, knowing he's ok, knowing he's with God, knowing I will see him again, but missing him still.
And life goes on. We hold our heads as high as we can and we live for these boys. As it should be.
--Lucas' Mamma, Jenn
Friday, January 12, 2007
Bye Bye BooBahs Hello DoodleBops

Thursday, January 11, 2007
Who Knew?
Go David Beckham. Who knew? Just for playing soccer. Wow. Check it.Wednesday, January 10, 2007
More Troops?

Sunday, January 07, 2007
Page Under Construction

Friday, January 05, 2007
Baking 101-aa-zz (this is the 'sub' est of sub basic classes)
Jenn
The Littlest
Spit
It so disgusts me that if I see it, I cannot even walk anywhere near it, like the ground is now as disgusting as the spit itself. The other day I was walking to the car at the mall and this car had just pulled in right next to ours. I was literally walking towards the rear of our car to open the liftgate but not to the car quite yet and the guy driving the car who parked next to ours got out and spit this ridiculous amount of spit right there, on the ground where I'd have to walk. WT? I had no choice and I just stood there and stared at him. Sometimes I scare myself with my brazeness (sp). What would I have done if he had asked me what I was looking at? I probably would have acted without thinking and said something to egg him on like, "why did you have to spit right there where I have to walk?" and if he had started something back, trouble. I'd have been in trouble.
Think girl, think. One time recently, we were all (all four of us) walking in a WalMart parking lot and we were heading toward the direction of the store itself. On their way out came a trio of girls/women, I'm not sure I think they were women as immature as girls if you ask me. They were talking loud and boisterous in an obnoxious way, enough for me to probably glare at them a bit and then with the cussing. And then with the S and the F and the MF and I'm all gawking and I actually muttered, "what are you...?" and my husband whipped around so fast and gave me one look which said "Quiet". Then as we walked into the store further away from them (and thank goodness, the Oldest did not hear, was oblivious, how I don't know but he was so really, no harm done but still...) my husband said to me, "you aren't the police of the world, honey" . Ugh. Really? No one had yet informed me of that. I thought I was the El Capitan of the world. You know, I'm the boss applesauce. Eh, yeah, right. Kay. No. I know that. But I'm telling you, if he had not been there to bring me back to reality, I would have likely been in a bit of a brawl at the local Wally World. I would have been on the local news with a big black eye, sure would've.
Spit and loud crass talking. My pet peeves. Come on people, have a tiny bit of self respect. I mean, I'm all perfect and what not, so you should be too.
Anyone who knows me, knows I am ANYTHING but perfect. Take it all with a grain of salt. How about the extra salt I put in my icing I made tonight? That I could have done without. ;-) More on that later.
Kachow.
Brave
Thursday, January 04, 2007
I wonder...
I don't know. I have said a thousand and one times that I have changed because of that. I know it's true and so do you. So what's new? I'll tell you what's new. Each day still now, each day I discover something new either about how I feel or a memory and what it might mean or even how calm I can be in a would be/could be high stress moment. I feel stress, it's there, a lot it's there but because I'm like a chameleon now and can hide it so well, on the outside, all you see is calm. I can see the baby getting ready to fall and hurt himself and I just stand there. I suppose I have run before to his side and I have, but mostly, I'll just stand there and let it happen. I tell myself, he has to learn. He wants to crawl up on that couch and stand up? I calmly walk over to him and stand there ready for anything but maybe not all the time do I pull him down. Before? Before Lucas? I would be yelling every time, running like a maniac, putting my hand to my mouth in high drama, now that is not so much.
For all the things I think I am, I'm sure my perception is skewed. And sometimes, when I want to scream at God that I'm angry that they don't get to play together; all three of them right now, I just push it out of my mind and carry on with my day. Where can that go? I'll tell you where, it goes into the stress bottle. And now we're full circle. BUT BUT BUT on that note, I guess that's why I write. To release it all. To remember. To document it all in this new age of blogging and all that jazz..and it helps me stay (helps key word helps) mentally ok. If there's a pill to get me all the way there, I'm all ears. :)
Jenn
Purging/Fixing/Cleaning
I'm leaving Christmas up until January 15th. Then it comes down. I tried to turn the Christmas tree on the night before last and he just turned it right off. Why? Can't I enjoy it a bit longer? Scrooge. That's what he is. OR maybe he's not wanting our neighbors to see our tree from the outside, maybe they'll think we're odd for still having it on? I personally don't care WHAT they think, as per my personality, but HE on the other hand, well, he does. Hmph.
Toys, clothes, old lamps that don't work (and why btw do we HAVE such things?), they're out of here. Gone. Adios. Buh bye. See Ya. Sianara. Catcah on the DL. It's time and it's all the backwards weathers fault that on January 4th, I'm feeling a major rush of Spring Cleaning coming on.
:)
Jenn
Monday, January 01, 2007
The Notebook
The thing I worry about and truly always have, is that one day I will have Alzheimers. In that vein, this book kind of jarred some other worries I have had and just intensified it all.
I said to my husband after reading the book, "Honey, if I end up with Alzheimers, will you still love me?" to which he said, "Well of course, will you REMEMBER to love me?" Such a funny man. But really, not funny. :(
All kidding aside, I have this huge fear, based in some things that happen to me or I do really, that I will have this disease. I probably already have it but it has not reared its ugly head yet. Maybe subconciously, this is why I write so much. I cannot be utterly honest in my writings, because I just can't but I do my best and hopefully, if I ever do end up with Alzheimers, these will be helpful memories for my family. And the Lucas site too. My God, we cannot forget him. I think I'm mortified if my memory goes, no one will remember him. Like I do. With such clarity.
I am going to research if there is a genetic test to see if you have the gene for it. I'm not a hypochondriac (sp), I promise. This is something I have beleived for a long time. Then I read this story and not only did the love stuff move me, but the Alzheimers thing just kind of shook me up too. Good story. Not interested in the movie though. Enough of that.
--J
